Will asked me to report back that his morphine experience was less than satisfactory. It made him have weird and scary psychodelic thoughts and all the sounds on the ward were turning into threatening music in his mind. (I like to think this says something about his inner musical genius.) It was a tough night with emergencies elsewhere on the ward, so there was lots of disprution and stress and Will didn't really get any sleep.
Will has now been moved to a side room, which commands an enviable view of the hospital duck pond (nicer than it sounds) and autumnal trees. It'll be great once he starts feeling well enough to appreciate it. We heard today that he has pseudomonas in his new lungs. He had this bug in his old ones and it's likely that it got transferred from his sinuses. Apparently 75-80% of CFers retain it after transplant, and they just try to hit it fairly hard and it's not usually a particular problem. So the IV antibiotics are continuing and he's nebulising colomycin, which he knows of old. He had another bronchoscopy today and Jaz, the consultant chap, was happy with what he was seeing, saying that the lungs were looking pretty healthy really. At the moment the hardest thing for us both is the psychological battle - it's hard to keep the faith that things will get better and easier. It's so tempting to expect too much too soon, but it really is very early days and everyone always told us it would be hard. There was mention of getting Will to the gym tomorrow, and I think activities like that will really help.
So, a rollercoaster of a day, but I left Will a few hours ago looking reasonably relaxed and settled (and he had perked up to the extent that he made me take photos of his wound!), so I'm hoping it'll be a better night for him. At least he'll be calmer in his new executive suite. Keep up the thoughts and prayers folks.
1 year ago