I have Cystic Fibrosis and this is my experience of getting a lung transplant.
Saturday, 24 October 2009
We all finally got some sleep last night. Ellie and I ended up at a Travelodge on the A14 while our families colonised the house in Cambridge. We left Will at about half eleven. He was off the ventilator and breathing for himself. He's on loads of O2 so he doesn't have to work too hard, but his blood gases are looking good and his new lungs seem to be doing their job. He was pretty awake by the time we left and was asking about what had happened and even cracking a few jokes. He's in a lot of pain but they should be able to control that better the more awake he is. There's still a long way to go but he's doing as well as we could hope. Thank you all for your lovely messages. When I get a chance to use a computer I'll share more of the ins and outs of the last 45 hours. This this has been the weirdest and scariest thing ever - still can't believe it - but the staff at Papworth have been completely fantastic. More love to you all. Xxx
I am a 35 year old CFer married to Vicky and living in Cambridge, UK. I had a double lung transplant in October 2009. This blog follows our ups and downs through the pre- and post-transplant experience, as patient and partner.