I've had a good series of indecisive wobbles over the last few days. Having been offered the FOB on Friday morning and turned it down, I woke up on Friday feeling not so hot and my blows were down so I rang again. They managed to squeeze me in and so I did get the FOB after all. Karthick (sp?), the doc doing the bronch said he'd take a look and use his judgement whether to take a biopsy to check for rejection. When I woke up on the ward he said he'd seen inflammation of the upper airway and that was consistent with a virus, and lower down looked ok so he didn't take the biopsy.
Today I went back to clinic and the tests from the bronchi didn't grow any bacteria (so no antibiotics) but did grow adenovirus, i.e. a cold.
So it seems I have a virus and will just have to wait to get better. As the doc said today 'unfortunately you are in the land of normal people for this one - nothing we can do'.
Reassuring I guess but I'd really like that lung function back, and whatever is said I know I'll be anxious until my blows are back to normal.
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5 weeks ago