Clinic today, to check up on my progress following last Thursday's FOB debacle. I noticed as I arrived this morning that I was on the list with "FOB?" next to my name, and then heard the receptionist confirming my bed on Duchess for the night. So I kept my fingers crossed that my blows would be spectacular enough to keep me out of hospital. I was reasonably confident, having had good numbers at home yesterday.
I got there pretty early so was 2nd on the Heart/Lung transplant clinic list. This means I got the usual X-ray, bloods and blows done quickly. The blows were good - better than ever in fact, although for some reason due to the technicality of peak flow and it dictating which numbers they record, the ones written down were the same as my previous best. The doctor was still a bit concerned about my Neoral levels, and will review today's bloods and let me know what, if anything, to change. If they are OK they will start tapering off the steroids at 5mg/week.
So I escaped the admission, with the proviso that they want to see me for bloods in a week, and back in clinic in two. All good though, really.
Busy day at work, now off to gym (!) courtesy of a friend who just joined and nominated me for a free week... I've had no staying power with gyms in the past, but hey, it's free so worth a go.
Still alive and kicking
5 years ago
Good to hear you're doing OK. I have some questions for you:
ReplyDelete1. Are you back at work full time?
2. How did the ping pong weekend go? (Yes, I know it's really Table Tennis but ping pong sounds so much more fun.)
3. Are you ever going to post wound and scar photos or have they been deemed too gruesome/revealing for public consumption?
Hope that wasn't too Spanish Inquisition for you...
And one from me: is that wonderful singing voice staging a gradual return? I do hope so!
ReplyDeleteThank you both for generous and moving posts over the last couple of months.
Love to you both from Sarah (Jays).
Stalham December ... ?
ReplyDeleteCat-girl:
ReplyDelete1) No, 4 days/week as I was doing pre-transplant. I'm still only on a 4 day/week contract so until I decide to go for it and become a full timer I'm only being paid for 4... Maybe I'll just stay on 4?
2)Ping pong has stalled somewhat. Need to get arse in gear and go to st.neots on Monday, which is the nearest place that has an active club over the summer. Did buy a box of 72 balls though, so should be able to go to Kelsey Kerridge and hit balls around on my own.
3)One day I shall post them. Can't right now as I'm at work. There aren't many, and they do make my torso look exceedingly unattractive - I seemed to have quite a pot-belly after the op: I reckon partly from being out of shape as I was exercise-comprimised, and partly due to bloating from the op and drugs. There is a particularly fine one involving a colostomy bag - luckily stuck over a drain hole on my front, rather than being used as intended...
Sarah (Jays):
Singing voice is ok although I am in the middle of my first cold for well over a year, so it aint great right now. It will definitely be servicable though, and, joy of joys, I can breathe long phrases. Need to get round to organising some lessons to try and get some of the higher notes back...
Justin:
I talked to JJ the other day on the phone and mentioned returning for the final Jay concert under his baton, or possibly another one sooner. Could you drop me an email with the concert dates and I'll see which I can do? Would be great to see everyone - I've left it far too long.
www.jaysingers.com !!
ReplyDeleteIt's all there but I'll send you a note later as well
Cat girl?? Hmm, well that's a fair comment I suppose, especially with the new job.
ReplyDeleteAnyway, thanks for the answers - and don't worry about the pot belly, we all know you're an Adonis really ;o)
p.s Aren't 72 balls a little excessive? It's not like golf where they are easily lost! Admit it, you couldn't resist a bulk buy discount.
2nd Edition: "Taking Flight: Inspirational Stories of Lung Transplantation" Looking for Stories
ReplyDeleteIf you, or someone you know had a lung, lungs, or heart/lung transplant, anywhere in the world, any lung illness, and also an opportunity for carer, family, or friend, to get their story published. Also I encourage donor families, share their experience, if they donated a loved ones lungs for the beauty of "The Gift of Life."
Few Details About the Book
It will contain stories that the contributors write themselves, a family member, or whomever they would like to write it, and if they are not comfortable with writing their story, I can do it.
This is a rare opportunity to get your story published for free!! I love free things myself.
I will be posting and forwarding information on simple ideas how to approach your story writing. I will offer ideas, and hints what you might want to talk about. Information on copyright, and what are the laws.
The cover design will be like the first edition. I will ask the contributors of stories to send in their pictures, drawings, photos, or cover design for a great new book cover. The name of the book will remain the same, the only addition is "2nd Edition". Keep in mind the cover of the first book, your submission should be relative to the name of the book and with the same type of theme : butterflies, flowers etc.
Once I recoup the expenses with the publisher, the profits will be given to organizations, mainly in the lung area, or donor area. The contributors are the only ones who can make suggestions. After I research them, the profits will be distributed.
The best way to learn more about the process is to join the Facebook Group site I started. Please join the Group and read the steps in contributing your story in the DISCUSSIONS section. There are deadlines in the coming months, so best to learn about the process as soon as you are able.
Lung Transplantation: Taking Flight with New Life
http://www.facebook.com/home.php#/group.php?gid=245756329913
So if you, or anyone you know is interested, please pass this email along, and have them contact me at:
luckylungsforjo@aol.com
I will be in touch and the process begun.
Looking for another successful Taking Flight!
Joanne
Great news! Very much looking forward to that.
ReplyDeleteSarah